SCDAA Miami-Dade County Chapter, Inc

WHO WE ARE

​The Sickle Cell Disease Association of America Miami-Dade County Chapter, Inc. was founded in 1978 as the Dade County Sickle Cell Foundation, Inc. We changed our name in 1995 to comply with other local affiliates of the Sickle Cell Disease Association of America, Inc. (SCDAA) Miami-Dade Chapter. Its membership is comprised of lay persons as well as medical and allied health professionals. It is the successor of the Dade County Sickle Cell Advisory Council which was established as the “community arm” of the University of Miami Comprehensive Sickle Cell Center in 1973.
The SCDAA Miami-Dade County Chapter is affiliated with the SCDAA, the National Voluntary Health Agency and the affiliated Combined Federal Campaign. It is a charitable non-profit organization that is exempt from taxes under section 501 (c)(3) of the Internal Revenue Code. SCDAA Miami-Dade County Chapter, Inc. works closely with the University of Miami Sickle Cell Center in achieving its goals. It is, however, an independent and autonomous organization and reaches out to help all individuals and families affected by sickle cell disease in the Greater Miami-Dade County Community. It is funded by contributions from fraternal, civic and social organizations, individual donors and corporations.

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MAKE A DIFFERENCE
​Our Purpose
SCDAA Miami-Dade County Chapter, Inc. was established to encourage and support education, testing and genetic counselling in the hemoglobinopathies (sickle cell disease and related conditions); to encourage and support research in sickle cell diseases and related disorders; to encourage and support effective and sensitive medical treatment for persons with sickle cell diseases; to solicit and secure funds for the support of programs that provide these services; and to provide additional direct services to persons with sickle cell diseases and their families.

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Public Education

​Education is a very important component of the SCDAA Miami-Dade County Chapter. It continues to participate in various community events to inform people about sickle cell disease: Each educational activity is designed to make people aware of sickle cell anemia and sickle cell trait, to motivate them to be tested, and to build support for servicing programs.

​Some of the Chapter’s members are part of the Sickle Cell Speakers Bureau, which provides information to organize groups interested in knowing more about sickle cell disease. The SCDAA sponsors the educational material available at the University of Miami Sickle Cell Center.